Welcome to Informed Parents United Together! IPUT is dedicated to the full Inclusion for our Children and Adults with Disabilties in Society! IPUT is a Non-for Profit Organization and Volunteer Based!

"All Children, All Together, All The Time!" "Equal Access, Equal Treatment!"

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OT SensoryIntegration Links
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Gifted Education
 
 
 
What is Universal Education, it is not just Inclusion it means

All kids, All together, All the time..But with support and Collaborative planning!
Check out this link to the Universal Education that has become a state mandate in Michigan...
/Documents/UnivEdBrochureFINAL_incl_152066_7._Glossary_03-02-06a.pdf

 
 
 Please check out our IEP Toolbox, and our Inclusion Links, we have links to nationwide and local Inclusion, *Universal Education* plans, programs, and more. All Children, All Together, All the Time.....
IPUT is looking to start a new IEP Buddy Program. We are inspired by other state starting their programs and think it's a great idea. We would like to volunteer to attend IEPS with each other for support, to make the process less intimidating, and to learn from each other's experiences. We think it is a great way to continue building our bridge together. If your interested please contact us at www.iput.org and click on the Contact Us Button, or at our email of IPUTTAMPABAY@iput.org!

 
 IPUT would like to recognize the amazing work of the
Florida Youth Council on passing this bill Governor Charlie Crist signed the Disability and History Awareness Bill on June 13, 2008....
HR 9153 - Disability History and Awareness Weeks:
Recognizes October 1-15, 2008, as "Disability History and Awareness Weeks" & encourages public schools & universities to provide instruction on disability history, people with disabilities, & disability rights movement.
 Click  here for entire bill loaddoc.aspx_FileName=_s0856er.pdf
Amazing Resources for Teachers brought to you by the Florida Youth Council

2008 Presidential Candidate Positions on Disability-related Issues
Prepared by the Ohio Legal Rights Service,
September 2008 http://www.olrs.ohio.gov/prescompare.htm

Florida Advocacy Center http://www.advocacycenter.org/voting/index.html

Disability. Gov Florida Info

http://www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=5670

Florida Developmental Disabilities Council

http://www.fddc.org/sites/default/files/file/news/Voting-in-Florida-A-Guide-for-Persons-with-Disabilities.pdf

http://www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=5670

My Voice, My Vote Helping Young Adults Exercise Their Right To Vote

http://www.myvoicemyvote.org/

Here are some more voting resources

http://www.bazelon.org/issues/voting/index.htm

 

Hopefully all are registered (it’d now too late for that in VA). For those who are registered read the info on BAZELON: http://www.bazelon.org/issues/voting/index.htm

 

 

 Check out the side panel for documents you may down load:

 

New 2008 Resources:
Guide to the Voting Rights of People with Mental Disabilities

Handouts and flyers for posting in facilities and at polls

Chart of state laws on voting qualifications affecting people with mental disabilities (6/16/08)

Appeals Court Favors Individual Determination of Voting Rights for Disenfranchised Citizens with Mental Disabilities (8/23/07)

Access to the Ballot for People with Disabilities

The Bazelon Center has also developed a 1-page flyer that you can circulate to help learn about problems with voting access in your area. It's available in two versions


FLORIDA STATE PARKS CELEBRATE DISABILITY AWARENESS MONTH

--DEP highlights “Access for All” efforts--

TALLAHASSEE – The Florida Department of Environmental Protection’s (DEP)

Florida State Parks are celebrating Disability Awareness throughout the month of

October. The Division of Recreation and Parks has committed to ensure its facilities,

programs and services are accessible to and usable by all people, including those with

disabilities. Access for All, the Division’s commitment to providing resource-based

recreation to everyone, is the theme for October’s state park celebration.

“The Division’s goal is to provide equal access to all facilities and programs within

disabilities. Access for All, the Division’s commitment to providing resource-based

recreation to everyone, is the theme for October’s state park celebration.

 


 Please check out our IEP Toolbox, and our new links on FBA and the difference between IEP and 504 plans, our new behavior section, and more!
 
 


  
IPUT Has 3 List Serves of our individual emails and announcements
 to join our email lists please click on the links below
 

 

 

  Subscribe to IPUT4UniversalEducationandAdvocacy
http://groups.yahoo.com/group/IPUT4UniversalEducationandAdvocacy/join



 


Welcome to IPUT, Informed Parents United Together INC

Advocating for Universal Education and More!

A Non For Profit Agency



Mission

At an individual local network level, we seek to educate parents

and increase their advocacy for Inclusion of children and adults

with disabilities in General Education environments.




Vision

"All Children, All Together, All the Time!"



Philosophy

As a group of networks, we seek to support each other

and to combine our voices

to advocate for the inclusion of all children who are routinely seperated

and segregated based on disability.

As a statewide coalition of networks, we seek the

fundamental changes to the education system

that are necessary if we are ever to achieve

"All Children, All Together, All the Time."

We seek to align ourselves with like-minded

organizations and to a

dvocate for the adoption of policies, legislation,

and practices that support Universal Education.

Systems change happens for all, change can not

be made one person at a time.

To make effecient systems change, we must unite

and never settle, "All Kids, All Together, All the Time!"




 

THE PRACTICES of UNIVERSAL EDUCATION-DESCRIPTIONS

There are 16 Effective Practices for Universal Education.

The Practices describe those things that are done in a learning

community in order to support Universal Education.

 

Universal Education is collobarative planning to make Inclusion Work!

 


Brief descriptions of each practice are:

1. There is Administrative Leadership. Administrators provide leadership
to create the vision for system change, and to sustain reform initiatives.




2. Supports are found in the general education classroom.
Support from specialists, para-educators, student assistants, physical therapists,
occupation therapists etc. Is provided within the general education classroom community.




3
. There is peer support and interaction. Mutually supportive social and
learning relationships are encouraged. Benevolent `helper' model is minimized.




4. Classroom composition is based on natural proportions.
Students with disabilities are members of general education
classrooms and placement is based on natural proportions (10-15%).




5. Differentiated instruction is practiced. Instruction is differentiated for
all students based on learning styles, multiple intelligences, interests and skills.




6. Authentic learning experiences are the norm. Learning takes place in
authentic, real-world settings or connections are made to real-world
examples and experiences.




7. Physical environments facilitate learning and are accessible for all.
The physical environment and provisioning of the classroom and
school invites and facilitates learning for all.




8. There is a focus on reduction of dependence on 1-1 adult support.
Individualized instruction is implemented in ways that reduces dependence
on 1-1 adult support. Independence, interdependence, and natural supports are emphasized.




9. Students are educated in age-appropriate placements and heterogeneous groupings.
All students are included in age appropriate, general education classrooms
and grouped heterogeneously for most instruction
(I.e. Limited use of needs-based grouping within the classroom).




10. Community building is fostered among students
(I.e., cooperative versus competitive practices are encouraged).




11. Students have access to accommodations and up-to-date technology.




12. All students participate in all activities.
All students participate in the same learning and extra-curricular
activities although some students may have modified goals.





13. A collaborative culture is fostered. The school climate is one that fosters
a collaborative culture which supports the meaningful involvement of
all stakeholders: the student, the family, and professionals.
This collaboration requires adequate time to plan, review and
develop skills so ALL team members can actively participate.
(Based on "Principles of Family/Professional Collaboration," Bishop, Woll and Arango 1993)




14. Transition planning occurs at all levels. It is recognized that
transition planning must occur to prepare students for transitions
from grade to grade, level to level, from preschool through post-secondary school.




15. Positive Behavior Support (PBS) strategies are implemented.
PBS strategies and plans are implemented school-wide, in the classroom,
and for individuals. PBS plans are based on functional assessments
and interventions that focus on ecological changes and the learning
of new skills. Bribes and threats of punishment are to be avoided.




16. Meaningful evaluation of progress is made. It is timely and continuous
and addresses individual student progress, school-wide achievement,
and overall program effectiveness.



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IPUT is a TOTALLY FREE VOLUNTEER ORGANIZATION

NON FOR PROFIT ORGANIZATION!

We do not accept ad sales, or take any money

for our free services!

We are here to educate and advocate!

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Thank You To Everyone who came out to see IPUT presents

Dr. Jill England's Universal Education Forum!!!

See below for the printable link of the handout

Dr. England handed out that this a great information source for Inclusion!

For more information on Universal Education and Dr.Jill England

For more info please go to

www.everyonetogether.org 

Click here for the 35 page PDF of this handout on Inclusive Education...
          
/Documents/Dr. Jill England Handout from the Universal Education Forum.pdf


Another great Universal Education Guide

 http://www.fddc.org/council/FDDC_UnivEd4.pdf


Great Resource for Inclusive Environments
/Documents/Least Dangerous Assumption.pdf


Teaching Children General Education Curriculums
http://www.spannj.org/BridgeArchives/iep_decision_making.htm


"Our School Doesn't Offer Inclusion" and Other Legal Blunders

Paula Kluth, Richard A. Villa and Jacqueline S. Thousand

Our School Doesn.pdf

More Links and Articles about Inclusion, and Inclusive Education


Enhancing access to the general education
curriculum for students with disabilities.
Browse our resources
http://www.k8accesscenter.org/index.php



Autism and the Inclusion Mandate
http://www.hoover.org/publications/ednext/334488



There is no place called Inclusion

www.iidc.indiana.edu/IRCA/education/noplace.html



Click below on these links as well for classroom tips
/Documents/Autism Aspergers Book List and Resource.doc

/Documents/Sensory Issues.doc
/Documents/Tip Sheets and Printables for Aspergers Autism and Sensory Impairments.doc



Great Resource for Inclusive Environments
/Documents/Least Dangerous Assumption.pdf


--------------------------------------------------------------------------------



Local Support Group and Upcoming Events

 

 

 


These are the notes from our Partner Sharon Baron Sbaron@iput.org about the last HCPS ASD Subcommittee Meeting held on May 28th Children's Board of Hillsborough..click here:

/Documents/Notes from the ASD SubCommittee Sharon Baron Notes 5-29-08.pdf

 

See below for info on details on the next meeting

 Tuesday December 9th 10am-12pm at Place to be announced

NEW AUTISM SUBCOMMITTEE MEETING FOR

 HILLSBOROUGH OPEN TO EVERYONE

The 10/7/08 ASD Subcommittee was held at Pizzo Elementary yesterday, stay tuned to IPUT for some interesting updates.....

 


  Hillsborough County County Schools
Superintendent's ESE Advisory Council
*Meetings will be held on the fourth Friday of each month.

 

Come out and share your ideas, or suggestions about issues regarding Exceptional Student Education! 

     

                      Disabilities Awareness Month

November 21, 2008                                  General Meeting       

Guest Presenters: Denise Frenz & Rose Calco of the Florida Inclusion Network

January 23, 2009                                       General Meeting      

February 27, 2009                                     General Meeting      

March 27, 2009                                         General Meeting

April 24, 2009                                             General Meeting

Guest Speaker: Kristine Hensley, Supervisor of Career and Technical Education

May 22, 2009                                              General Meeting



FRIENDS-Support, a Down syndrome family support group.

FRIENDS is an acronym for Friends Raising, Inspiring, Educating and Nurturing Down Syndrome. The group meets from 7 to 9 p.m. the first Friday of each month at the Brandon Community Center, 502 E. Sadie St.
www.friends-support.org

 

 

Autism H.A.P.P.E.N"
The Hernando Autism Parenting and Personal Experience Network will be meeting on the 3rd Wednesday of every month to discuss a different topic pertaining to Autism Spectrum Disorder. Grandparents, as well as parents of children who have yet to receive a diagnosis are welcome to join the discussions.
Location:
Pediatric Therapy Works
Time:
7:00 - 8:30 p.m.
Please note that there is no childcare, however, the meetings are free of charge.
For more information, and to register, please contact Leslie Bolen at (352) 683-0209 or email
HernandoAutism@aol.com


VALRICO (Brandon Area)
Concerned Parents Of Autistic Children - Monthly Meetings are designed to support parents raising children with diagnosis on the Autism Spectrum.
Last Sun. 3pm - 5pm, Free,
Natures Health Foods, Dr. Moursi by email to: hmoursi@hotmail.com, or call 813-643-9393. On the web at
www.cpoac.org

 

 

Special Students of Hernando County

www.specialstudentsofhernando.com

We are a support group for parents with children that have, or are suspected of having,
any learning disability, developmental disability, or other medical / learning

impairment that interferes with their educational experience.
Does your child need special services in their educational environment?

Are they on an IEP (Individualized Education Plan), a 504 Plan,

or are you working towards one?
Our goal is to share resources, understand the laws that protect

our children in school, and to keep on top of the best tools to help

 our children succeed in their education!
All parents, caregivers, and professionals are welcome!

 

Greetings!
We are pleased to invite you to C.O.P.E., a support group for
parents and family members of a child with special needs.
Regardless of the type of need, physical, developmental, emotional
etc...
you will find people within the group who understand what it is like
to care for a child with a disability.

C.O.P.E is designed to provide parents of children with special
needs the Support, Resources, Hope and Fellowship needed for daily
living.
C.O.P.E meets the fourth Monday of the month at 7:00 p.m. beginning
January 22, 2007 at:
Bell Shoals Baptist Church, 2102 Bell Shoals Road, Brandon, FL,
33511, Phone: (813) 689-4229 in Conference Room BSC.

For more information contact the Children's Ministry office by
calling 689-4229 Ext. 224 or email:
bthutchinson@verizon.net

Trust in the Lord with all your heart; do not depend on your own
understanding. Seek His will in all you do, and he will direct your
paths. (Proverbs 3:5-6)
 
 
 
STAND - Pinellas
www.standadvocates.org




Lauren's Link
Sibling Support Group/ Special Needs
Hope to see some old faces as well as some new at the
next Lauren's Link Sibling Support Group*.
Please RSVP.
Thank you,
Kris Zak & Mary Jo Smith
(*This group is run by parent volunteers and is not a substitute for
professional counseling.)
A fun, supportive group for siblings; kids who have a sibling with special needs.
Fun, support, some cool strategies on how to understand your special needs sibling.
Come meet new friends, and have a fun time.....
Where: St.Andrews United Methodist Church
3315 Bryan Road (at Bloomingdale Avenue)
Rm 304 (Family Life Building)
When: 2nd Friday of the month 7-8:30pm
Contact Kris at 671-1038 or MaryJo at bamboobreeze@verizon.net



The PASS (Parents of Autism and Aspergers Syndrome Support) Group

We meet on the 1st Friday of the month from 9:30-11:30 am

at the Campo Family YMCA from September through May.

We also hold many social events for families including

recreation days for the whole family, ladies/mens nights out, and couples nights out.

Our meeting schedule can be found at
www.ideasaboutautism.com/pass

The meetings are free and open to the public.
 
 


Floridians Selected as Inclusion Ambassadors!

Advocates will Support FDDC's Statewide Grassroots Effort

August 28, 2008

Coverage:
The Naples Daily News
Santa Rosa's Press Gazette
The Tallahassee Democrat

TALLAHASSEE, Fla The Florida Developmental Disabilities Council, Inc. (FDDC) has selected six Inclusion Ambassador for its statewide grassroots initiative. Advocating on behalf of people with developmental disabilities in Florida, each Ambassador will take the lead in helping FDDC educate others on issues facing Florida's most vulnerable citizens. The selected individuals include:

  • Kathleen Buerosse - The Palm Beaches
  • Gina Hammons - The Tampa Bay Area
  • Julie Marchetti - Southwest Florida
  • Patricia Pardinas - South Florida
  • Vickie Smithee - The Panhandle
  • Rev. Bob Streater - The Big Bend

State budget cuts have diminished services for many people with developmental disabilities, and funding is in danger of further reductions. The results could be devastating for individuals and families, which is why the roles of Inclusion Ambassadors are so important.

Inclusion Ambassadors across the state will build local networks of support in their home area. In July, the Ambassadors were invited to take part in FDDC's Grassroots Training Day in Tallahassee. The event provided guest speakers and workshops to prepare them for their roles. Among the topics discussed were FDDC's legislative priorities:

  1. Medicaid Developmental Disabilities Home & Community-based Waiver Services & Funding
  2. Part C / Early Steps Services & Funding
  3. Alternative Revenue Generating Sources for Human Services & Education

Through contact with policy makers and individual supporters, the Ambassadors will advocate the importance of inclusion meaning that all individuals, with and without disabilities, live, learn, work, play and participate together in all of life's experiences. FDDC hopes the commitment of Inclusion Ambassadors and others will contribute to the successful protection of services for Floridas citizens with disabilities. For more information, visit FDDC.org.

About the Florida Developmental Disabilities Council, Inc.
The Florida Developmental Disabilities Council, Inc. (FDDC) is a non-profit organization funded through federal assistance from the Department of Health and Human Services Administration on Developmental Disabilities. The Council accomplishes its mission by supporting innovative initiatives that demonstrate new approaches to enhance the independence, productivity, inclusion and self-determination of individuals with developmental disabilities in all facets of community life. Contact the FDDC by visiting its website at FDDC.org, call toll-free at (800) 580-7801 or TDD at (888) 488-8633.



 


'Moms Night Out' For Parents Of Kids With Disabilities
By LINNEA BROWN

Hernando Today
Published: April 11, 2008
SPRING HILL - Gina Hammons vividly remembers the initial feeling of devastation when her child was diagnosed with autism a decade ago.
It was the death of a dream.
"It's a death of your perception of parenting and what your child's life is going

to be like," the Spring Hill resident said, whose son is now 13.
But slowly she began talking to other parents of kids with disabilities,

and her world brightened.
"It makes such a difference for someone whose child has just been diagnosed

to have another mom that's been there, telling them everything is going to be OK,"

Hammons said.
Now, Hammons wants to make sure local parents of children with disabilities

 have the same opportunity to network with others.
From 7:30 to 9:30 p.m. on Thursday, April 17, Hammons will host a "Mom's Night Out"

at Applebee's Neighborhood Grill in Brooksville.
It will mark the first Hernando County event of behalf of Informed Parents

 Uniting Together, the nonprofit support organization Hammons started in Hillsborough County seven years ago.
The group aims to share information on upcoming trainings, educational updates

and more for children and adults with disabilities.
"It's like building a bridge," Hammons said. "Just getting to talk to other parents

who are going through the same things (such as) toilet training and hearing

'It will happen' makes such a difference."
A volunteer parent advocate, Hammons initially started the group in her family room in Tampa - where the family lived until recently - when her son was 6 years old.
"I just wanted to see what was out there, to see if (everything we were going through) was normal and to see if anyone else understood how I felt," she said.
Hammons created a simple "one-stop shop" Web site as a support resource for other parents, and it soon gained national momentum. It now averages 2,700 hits per month, she said.
With the motto of "All children, all together, all the time," the organization also seeks to advocate for inclusion of children throughout the state's education system who are routinely separated from other children based on their disabilities.
Hammons said her son, Ethan, developed autism after an extreme reaction to a vaccine left him unable to speak or walk. Through the hard work of teachers and therapists, her son now uses a texting device to communicate in school.
"He's nonverbal, but still manages to be the funniest, most sarcastic sixth-grader that they have at school," she said. "He's come so far."
Ethan still attends school in Hillsborough County, where Hammons has been hosting weekly IPUT get-togethers for years.
Hammons hopes to develop the same strong group presence in Hernando.
"I'm so excited to meet some Hernando parents," she said. "I'm hoping to get at least 10 people (at Thursday's event), but I'd be thrilled to find two."
She and her husband, Doug, also have a 10-year-old daughter, Bailey, set to enter the district's centralized gifted program next year at Explorer K-8 in Spring Hill.
Applebee's is located at 20090 Cortez Blvd. in Brooksville. For more information, call Hammons at 813-493-2805 or go to
www.iput.org



 

______


 

Tampa Area, FL November 6 - 7, 2008
Visit our Tampa Area web page
http://www.spectrumtrainingsystemsinc.com/tampa.html

"Social Relationships and Adolescents
on the Autism Spectrum"

Thursday, Nov. 6, 2008
"Adolescents on the Autism Spectrum"
Chantal Sicile-Kira

Adolescence is a time of positive growth as well as challenges. This session will provide practical strategies for teaching teenagers of all ability levels the necessary life skills of self-care, self-regulation, self-advocacy, and self-esteem. What and how to explain about puberty, relationship boundaries and sexuality will be discussed, as will common adolescent concerns such as bullying and masturbation. Individualized transition plans will be covered. Areas to be emphasized include: focusing on the student's strengths, developing work/career skills, preparing for college, different types of employment structures, employer needs and the use of mentors. Learning Objectives for Participants: Attendees will be able to: 1) Identify strategies to teach teens about their changing bodies, hygiene and self-care 2) Identify strategies to teach teens about modesty, privacy and appropriate public behavior 3) Discuss what and how to teach teens about relationship boundaries, and sexuality 4) Discuss what and how to teach teens about new work and career skills 5) Identify strategies on dealing with the changing emotions of teens, including meltdowns, aggression and depression.


Friday, Nov. 7, 2008
"Building Social Relationships in ASDs"
Scott Bellini, Ph.D.
This engaging workshop will provide an overview of a social skill instructional model developed by Dr. Bellini. The workshop will provide research on social-emotional functioning as well as practical and effective strategies for teaching social interaction skills to children and adolescents with Autism Spectrum Disorders (ASD). The model provides a systematic and comprehensive framework to guide parents and practitioners in the development and implementation of effective social skills programming. Learning objectives for participants: 1) Increase knowledge of social and emotional functioning 2) Increase awareness of the relationship between social skill deficits and social anxiety 3) Develop skills necessary to assess social functioning 4) Increase awareness of skill acquisition versus performance deficits 5) Increase awareness of available social skills strategies 6) Develop skills necessary to implement social skills strategies.

Location:
Holiday Inn Harbourside/Clearwater Beach South
401 Second St.
Indian Rocks Beach, FL 33785
(727) 595-9484

Rooms are $105 plus tax per night, for our reserved block.
Please call the hotel for reservations.
Hotel Directions

Professional 2 Days
Thru Sept 29th: $195 After Sept 29th: $205
Online Price: $185 Online Price: $195

Professional 1 Day

Thru Sept 29th: $130 After Sept 29th: $140
Online Price: $125 Online Price: $135

Parent 2 Days
$160

Parent 1 Day
$95
Visit our Tampa Area web page
http://www.spectrumtrainingsystemsinc.com/tampa.html





 

 Please Check Out Our New Transportation page!

On the left side of the website....
 


_____________________

 

 

A NO Consent Form for Restraint and Seclusion
http://www.aprais.org/no_consent.html

 

 

 

 

 

Hillsborough County Schools!!!!

Curriculum and Instruction
Action Item

DATE: Tuesday, April 15, 2008
TO: School Board Members
FROM: MaryEllen Elia, Superintendent
Click below for Proclomation!
Click here: 
/Documents/autism proclomation.pdf
SUBJECT / RECOMMENDATIONS
Adoption of Proclamation - “Autism Spectrum Disorders Awareness Month” - April 2008 (Curriculum and Instruction Division)
EXECUTIVE SUMMARY


We request the School Board adopt the attached proclamation designating the month of April 2008 as “Autism Spectrum Disorders Awareness Month” in Hillsborough District schools.

The district currently serves over 700 students on the Autism Spectrum through our Exceptional Student Education and General Education programs.

The Department of Exceptional Student Education provides students with Autism Spectrum Disorders the opportunity to acquire the knowledge and skills necessary to reach their potential. The goal of the district is to provide equal opportunities for the education of students with Autism Spectrum Disorders in the least restrictive environment and to offer a range of placement options to meet their needs. The district is proud of the dedication of our teachers and the ongoing support of our families.

ANNUAL DISTRICT GOAL(S) AND CRITICAL SUCCESS FACTOR(S)

All District Goals and Critical Success Factors

FINANCIAL IMPACT (Budgeted: Yes)

This agenda has no additional cost to the district.

EVALUATION
SUBMITTED BY: Glenda Koshy, Supervisor, Autism Spectrum Disorders

Wynne A. Tye
Michael A. Grego, Ed.D.

General Director, Exceptional Student Education
(813) 273-7025
Assistant Superintendent, Curriculum and Instruction
(813) 272-4221
C 3
Hillsborough County Public Schools (Florida) * Mtg.#20080415_291 * Section C Item# 3


----------------------

 

 

A touching video regarding inclusion for students with disabilities,
including one with ASD.

http://www.includin gsamuel.com/ preview/
*View this video with
subtitles
*Including Samuel is built on the efforts of Dan Habib and his family to
include Samuel, 7, in all facets of school and community. Including
Samuelalso features four other families with varied inclusion
experiences, plus
interviews with dozens of teachers, young people, parents and disability
rights experts.*
* **Note: Adobe Flash is required to view the video, which can be downloaded
at adobe.com




Blind boy, 8, wins in court
Wednesday, October 31, 2007
By Pete McCarthy
pmccarthy@sjnewsco.com

MANTUA TWP. Eight-year-old Brian Howard, who has been blind since
birth, won a key court battle Tuesday that will allow him to return
to Centre City School immediately.

Since the start of the school year, Brian's parents, Michael and
Michelle Howard, have kept their son home because the district was
planning to move him to another school.

"The court has acknowledged what we have been saying all along that
Brian deserves to be educated at Centre City School," family attorney
Christopher Manganello said. "It is regrettable that it took a court
order to force the district to do what it should have done all
along."

A judge ruled Tuesday that the district had no right to move Brian to
another school, which the family considered a more restrictive
setting.

The parents argued the district should have tried to Braille Brian's
books and classwork so he could continue at his school.

"We're just happy that Brian can finally start to get the education
that he has missed for the past two months," Michael Howard said in a
prepared statement. "But we have to ask, Why did we have to hire a
lawyer to get it done?'"

The ruling means that Brian will resume classes at Centre City School
today, according to Manganello. Brian, who is the only blind school
in the district, will be entering the third grade.

"This case is about more than Brian," Manganello said. "It's about
holding school districts accountable for educating its special
education students, and not casting them aside."

Still unresolved are truancy charges the district filed against the
parents for not sending their son to school this year. The Howards
said their son was being taught by a private tutor who they paid for
out-of-pocket since the start of the school year.

A court date to resolve those charges is scheduled for Nov. 13 in
Mantua Township Municipal Court.

Manganello said he expected the case to be dismissed in light of the
judge's ruling.

If not, Manganello said, he would prepare a lawsuit against the
district, he said.

"I'm sick of the district pushing my clients around," Manganello
said.

A call to Superintendent Steven Crispin after hours Tuesday was not
immediately returned. Previously, Crispin declined to comment
specifically on the matter, but called it "unfortunate. "
 


The biggest steps of his life
By Michele Miller, Times Staff Writer

Published Saturday, June 14, 2008 12:38 PM

It took nearly three years for Greg Konrad to take his first steps.

The doctors had told his parents not to expect too much.

But they hoped anyway. And on June 5, he took the biggest steps of his life:

Now 19, Greg strutted across the stage at the USF SunDome to collect

his prized piece of paper along with the rest of the graduates of J.W. Mitchell High School.

His parents strived to give him the typical high school experience

but they learned to drop the expectations of "normal" — a word they are loath to use.

Greg's life will never be normal.

But his future beckons.

• • •

Greg was born Dec. 6, 1988, the second child of Jim and Barb Konrad, who were then living in Detroit. Jim was in the Coast Guard. Barb split her time taking care of their son, Garrett, and working part time at night to supplement the family income.

"The whole pregnancy was fine. It was a natural birth," said Barb, 49. "There were no problems — nothing unusual."

In hindsight, however, it seemed the doctor knew something was amiss. "She was looking at his infant picture and I said, 'Look, he's already a brat. He's sticking his tongue out,' " Barb said. "What I didn't know then was that was one of the symptoms."

A couple of weeks later, the findings of the chromosome studies confirmed what the doctor suspected. Greg had Down's syndrome.

"It was such a shock," Barb said. "You have all these dreams and expectations, then everything changes. There's this grieving process that you go through. I remember nights lying in bed and hearing him wanting to get up to eat, and I just didn't want to get up."

The turnaround for Barb came when Greg, then 10 weeks old, returned to the hospital. Greg had croup and pneumonia and the doctor was asking, "Do you want us to do everything to save your child?"

"It was like a slap in the face. Of course we wanted them to do everything," Barb said. "That was my awakening. My acceptance. You realize, this is my child, and I have to deal with it.

"Now I don't know what we'd do without him."

• • •

The family moved around because of Jim's stint with the Coast Guard. That caused setbacks.

"Every time we moved," said Jim, 52, "Greg lost about a year of developmental skills."

The Coast Guard eventually brought Jim to Clearwater and the family settled in Pasco. Greg enrolled at Cotee River Elementary, where his parents decided that inclusion — where Greg would spend his day in a traditional classroom with "normal" students — was the way to go.

"When you have a special-needs child, you think, 'I want my child to be as normal as possible to fit in,' " Barb said.

But Greg had other ideas. He wanted to be in the self-contained classroom at Cotee with other students who had disabilities.

"I asked him why," Barb said. "He said, 'Mom, my friends are there.' "

"That's when you have to really look at what you want for your child. You have to think if what you're doing is for you or for them," said Jim, who now works with students with disabilities at River Ridge Middle/High School. "As you go down the road, you have to change your expectations. You do the best that you can for your child, but then you have to be realistic."

Realistic meant that Greg would remain in self-contained classrooms at River Ridge Middle and Mitchell High and would receive a certificate of completion, instead of a high school diploma.

Still, his parents were determined that Greg would have as close to a typical high school experience as was possible.

The small black photo album that Barb put together pretty much sums it up.

Senior year was a banner one for Greg.

There he is on the football field as the team manager, filling a green Gatorade bottle. There are other snapshots taken at homecoming and at prom with his girlfriend, Katie Pittard, 25, whom he met two years ago at a dance class for special-needs students. Another has him accepting his trophy as the Special Olympics Athlete of the Year. And in another one, he's all smiles dressed in cap and gown for baccalaureate and graduation.

Greg really blossomed at the school — especially during his senior year, said football coach Scott Schmitz. He made new friends, showed his sense of humor and proved that he could do the job of getting water to the players.

"I can't remember a time in the last two years that he hasn't been prepared," Schmitz said.

• • •

Now it's time for the next step:

"Marchman College."

That's what Greg calls it, although Marchman is really a technical school in New Port Richey that houses various programs, among them a community-based instruction program for adults with disabilities.

The idea is for Greg to learn how to care for himself — how to take the bus, how to know he has enough money to pay for his purchases at the store. The time will come for Greg to move on, probably to a group home.

Greg could stay at Mitchell High until he is 22. He has mixed feelings about leaving.

"I'm excited," he says one moment. "I'm going to college, just like my brother."

In the next moment, he doesn't look so sure.

"My friends are at Mitchell," he says with a frown. "I want to stay at Mitchell."

His parents feel the pull of that dilemma.

"Do we give him that little bit of normalcy that most kids who move on to go to college have, or do we leave him where he's at for three years?" asked Barb. "What's better?"

Greg will be back at Mitchell to help out come football season, coach Schmitz said. And when Greg is reminded of that, he smiles really big and asks, "Do you know coach Schmitz? I like coach Schmitz."

"He's going to be fine at Marchman," Schmitz said. "He was upset and timid when he came into that locker room the first time — and he turned out just fine. And he'll be fine at Marchman, too."

Michele Miller can be reached at miller@sptimes.com

 or (727) 869-6251


Advocacy Agency Tells Appeals Court New Segregated School Is Illegal
By Dave Reynolds, Inclusion Daily Express
November 14, 2007

CHICAGO, ILLINOIS--Disability Rights Wisconsin, the state's federally-mandated protection and advocacy system, argued Friday that the development of a larger facility to replace the current Lakeland School violates the constitutional rights of students with disabilities.

A three member panel of the U.S. Seventh Circuit Court of Appeals in Chicago heard DRW's arguments that Walworth County's ongoing construction of the "self-contained" facility goes against the Americans with Disabilities Act because it would further segregate the children from their peers that do not have disabilities.

DRW filed suit against the county in June 2006 after the board voted to set aside $22 million to replace the 1950s era facility, which serves about 250 such students.

The county argued that no child has been forced to attend Lakeland, and that the school needs to remain an option for some students with disabilities.

A U.S. District Court judge in Milwaukee later dismissed the suit, saying that DRW failed to present anyone who was injured by the specialized, segregated school.

Jeffrey Spitzer-Resnick, a managing attorney with DRW's schools and civil rights team, told The Week Extra that he now has parents that claim they were harmed because they were not given a choice in their children's education.

While the panel considers Friday's arguments, the county is still moving ahead with construction of the new facility.

Oral arguments in Disability Rights Wisconsin v. Walworth County are available in an audio MP3 file.

Related:
Appeals court hears Lakeland School case" (The Week Extra)
http://www.theweekextra.com/news/1107/111307lakeland.html


Audio: Oral arguments in Disability Rights WI v. Walworth Co (Seventh Circuit Court of Appeals)
http://www.inclusiondaily.com/news/07/red/1114a.htm



 


Parents, Teachers, And Parents Support School Board's Inclusion Plan
By Dave Reynolds, Inclusion Daily Express

December 6, 2006

PALM BEACH, FLORIDA--"It's going to make the world better for all of us."

That quote is from Palm Beach County School Board member Sandra Richmond,

talking Wednesday about her district's plan to include all 24,000 students with

disabilities in regular classrooms in all of its 161 public schools.

Principals, teachers, and parents attended the board meeting to talk

about how inclusive education has worked for them and to praise the

board for taking that important step toward full inclusion, the South Florida Sun-Sentinel reported.

Carol Blarcharski, the principal at Loggers Run Middle School, said that regular

and special education students have improved dramatically on the

Florida Comprehensive Achievement Test and on meeting grade level requirements in the year

since her school decided to eliminate separate special education classrooms

and move special education teachers through the regular classes during the day.

The behavior of students with disabilities has also improved, thanks to peer pressure,

Blarcharski told the board.

"Sometimes they would act out in a special education class because they
thought they could get away with it,"

she said. "In middle school, it's about looking good for your peers, so now they have

role models in their friends who are working hard and trying to learn."

Sue Davis-Killian explained how her daughter Lisa, who has Down syndrome,

immediately excelled in a regular classroom.

"I tried to teach Lisa to write her name before kindergarten and she couldn't.

But kids in kindergarten write their name on the top of their papers several times day," she said.

"By the end of September, Lisa was writing her first name.

By Christmas, she was writing her first and last name."

Related:
"Palm Beach School district wants students with disabilities in regular classrooms" (Sun-Sentinel)

 

 


 

Schools must mainstream more students
Thursday, June 28, 2007

By KATHLEEN CARROLL
STAFF WRITER

Four leading child advocate groups sued the state Department of
Education on Wednesday, claiming it is denying thousands of special-
education students the right to be taught in regular classrooms.

The lawsuit, which was filed in federal court in Newark and
highlights the struggles of a Clifton 10-year-old, criticizes the
state for teaching too many students in separate classrooms and
schools. Federal law requires that schools provide students with
special needs the "least restrictive environment" for learning when
possible.

But the state isn't enforcing the rules, the suit claims. About 10
percent of special-education students are taught in separate settings
in New Jersey -- by far the highest in the nation and almost triple
the national average of about 4 percent. In addition, many
neighborhood schools lack accommodations to help special-needs
students succeed there, advocates say.

"Countless children with disabilities in New Jersey have been
unnecessarily segregated," said lead attorney David L. Harris of
Lowenstein Sandler in Roseland. The state's current special-education
plan "holds little promise for redressing this situation within the
educational lifetime of today's students."

State education officials declined to comment specifically on the
suit Wednesday, saying they had not reviewed it thoroughly.

"We have taken action to address out-of-district placement,"
spokesman Jon Zlock said, recalling Governor Corzine's recent $19.5
million grant program to help districts expand services for special-
needs students in regular schools.

The federal lawsuit was filed by plaintiffs New Jersey Protection and
Advocacy, the Education Law Center, the Statewide Parent Advocacy
Network and the ARC of New Jersey on behalf of the families they
counsel.

Advocates presented the state with a draft filing six months ago, in
the hopes of forcing intensive monitoring and enforcement, said
Joseph Young, deputy director of New Jersey Protection and Advocacy.
The groups filed suit when officials did not promise the desired
actions. The suit echoes similar complaints in Pennsylvania and
Illinois, Young said.

The groups are seeking a comprehensive plan "so that standards are
set on specific timelines and there's a way of rewarding or
sanctioning districts," he said. Thus far, the state has offered
incentives to promote inclusion, but not punishments for districts
that fall short, he said.

Lisa Guglielmini of Clifton, whose daughter is one of five students
mentioned as a case study in the suit, said she agreed to take part
so "that other children won't have to wait as long as my daughter to
get what they need."

Her 10-year-old daughter, identified as T.G., struggles with reading
but performs normally on state tests in other subjects. She has
bounced between regular and special-education classrooms over the
years, but both placements have proved too extreme, Guglielmini said.

In a regular class, she struggled to keep up, while one-on-one
tutoring was sporadic and ineffective, Guglielmini said. In special-
education classrooms, she was isolated from most of her peers and
fell behind in math and science because instruction was too slow.

"They should have something that's in between," said Guglielmini, who
said district officials recently granted her request for summer
tutoring and a one-on-one aide next year.

In an interview Wednesday, Clifton Superintendent Michael Rice said
he had not seen the complaint, which does not identify the student's
district or school.

"We look forward to reading the document," he said, "and to the
extent that there is something we can address to better the education
of this child, we certainly want to do so."


 

 

United Cerebral Palsy publicly released a report,

The Case for Inclusion 2007, on how states are serving Americans

with intellectual and developmental disabilities under Medicaid.

 The report ranks all 50 states and the District of Columbia on how

well the states are providing community-based supports.
http://www.ucp.org/medicaid/index.cfm?thisPage=ranks#rank

 



Subject: Family Cafe Inclusion

 
Hi family members,
 You came to see my presentation at Family Cafe a few weeks ago; I
 hope that you enjoyed it. As promised, I am sending you the link to a
 blog that I have started that will maintain information and
 user-friendly materials that I have used to train teachers who are
including students with disabilities in general education classrooms.
 In addition, these are also materials that I have used as a former
 inclusive classroom teacher.
 The infused IEP matrix seems to help gen. ed. teachers make sense
 of what they are responsible for teaching a child with disabilities
 across the general education school day (see the sample I've provided
 as well). The data collection matrix is an easy to use weekly chart
 that can document progress on IEP goals related to level of support
 (prompts) needed to sucessfully meet a given IEP goal.
 Please feel free to comment or provide feedback via comment
 sections within the blog. I hope that you enjoy the rest of your
 summer and have a great school year next year!

 Warmly,
 Jill Storch
>> BLOG ADDRESS:

http://www.alachuacountyinclusion.blogspot.com

  Jill Frenchman Storch
 Doctoral Student
 University of Florida
 Special Education Department



Extra, Extra - go read all about it !!!

"Every parent should be celebrating today!"


Alert: On 5/21/07, the U.S. Supreme Court issued its decision in

Winkelman v. Parma City School District. On the question presented as to whether

the Winkelman's "either on their own behalf or as representatives of the child,

may proceed in court unrepresented by counsel though they are not trained

or licensed as attorneys" the Court unanimously, in a 9-0 decision, ruled that they could.

Justice Scalia, with Justice Thomas, issued a separate Opinion that concurred with the Court's

ruling with an explaination that he agreed that parents could "proceed pro se in seeking reimbursement

and allegations about procedural violations." His dissent noted that the issue of FAPE is

the child's right to FAPE, and not that of the parent.

The full text the Court's unofficial summary, known as a Syllabus, the actual Opinion, and Justice Scalia's Opinion is available at:
http://www.wrightslaw.com/law/caselaw/ussuptct.winkelman.pdf



Thank goodness this guy was wrong on his legal "prediction":

http://www.lawmemo.com/sct/blog/2007/02/winkelman_v_par.html

 



                                 

Occupational therapist Amy Perry  

works with Ethan Hammons who is

 a child with Autisn work on lines in shaving cream in the mirror.

 

Tampa Tribune article
Parents Say Therapy Needs A Place At School
Skip directly to the full story
http://www.tbo.com/news/metro/MGBBCTBU51F.html#content


By MARILYN BROWN The Tampa Tribune
Published: May 1, 2007

TAMPA - Some Hillsborough County parents are spending hours driving their children to physical therapy after the school district banned their private therapists during class time.
Those parents say that chore dominates their lives, and some can no longer do it.
"It makes no sense," said Gina Hammons, whose 12-year-old son has autism and attends Maniscalco Elementary School in Lutz. Hammons drives her son up to 20 miles one way six times a week for physical, occupational and speech therapy.
"We have other children," Hammons said. "The thing is, the majority of our moms work. How are we supposed to do this?"
Parents say their children don't make the same progress without additional therapy outside of what they may get at school. Hammons' son has trouble focusing in class if he doesn't get morning therapy, his mother said.
For more than a decade, the Hillsborough school district allowed private therapists to pull clients from class and use vacant areas for services. That ended this school year.
"It got so flexible, it got out of hand," said Mike Grego, Hillsborough's assistant superintendent for curriculum and instruction. Private therapists were coming and going on campuses and upsetting schedules. "We were really accommodating."
Wynne Tye, the district's director of special education, said allowing it cut into students' instructional time.
"When a private provider comes on board, they are pulling a child out of the classroom," Tye said. That interferes with the district's legal obligation to provide a full day's education, she said.
She acknowledged that the district hires outside therapists through private contracts to fill a critical need.
Nearly 26 percent of the district's 191,000 students are classified as having some type of disability, but administrators kept no count of how many received private therapy on campus. When the change was made, five to eight parents a week complained, Tye said, but few do now that the school year is winding down.
Federal law requires public schools to provide services that children with disabilities need for their education. District staff and parents work out what that entails. A few families fight for years over services, and some seek private therapy while they wage that battle or after they give up the fight.
The state leaves it up to districts whether to allow private therapists in school, a state Department of Education spokeswoman said. The state doesn't have a list of which districts allow it.
Students Fall Behind
Brandon mother and military wife Sedonia Bernard uses private military insurance to pay for occupational therapy for her 6-year-old son, Jackson.
Jackson received occupational and physical therapy at school from the time he was 6 months old, she said. When the family moved to Tampa in January 2006 from Tucson, Ariz., his therapy at school was greatly reduced. Now he gets group speech therapy at Schmidt Elementary.
Jackson gets private occupational therapy for an hour on Saturdays, instead of at least three times a week, which a private therapist recommends. He has a weak body trunk that has delayed his motor skills, his mother said.
A few weeks ago, Bernard was called to a teacher's conference and told that her son hasn't mastered handwriting.
"They want him to repeat kindergarten," Bernard said. The family may get more private therapy to help him catch up.
Parents are willing to take their children after school or on Saturdays, but therapists and the district acknowledge it's tough for all of them to get therapy during the few hours after school. Children with disabilities are often too tired for therapy at the end of the school day, parents said.
Topic Elicited 'A Lot Of Dissension'
A district task force met for months and recommended last spring not to allow the private therapists on campus. If a principal and district agree, therapists may pay a fee for after-school access to do their therapy. The new rules were phased in by July 1.
One task force member, Sharon Baron, disputes that official report, saying the task force did not reach consensus on that point.
"It was one of the two most important topics of the entire task force," said Baron, who said she was one of the few members who attended every meeting. "There was a lot of dissension."
Baron has a 9-year-old son with autism who gets 300 minutes of speech therapy and 30 minutes of occupational therapy a week at school.
Medicaid also pays for physical, occupational and speech therapy outside of school, some of which Baron is trying to get the district to provide in school. She sees children who have lost their private therapy.
"I can see what it's done for some of the kids in my son's class," Baron said. "The schools are dealing with the behavioral challenges."
Amy Perry, a private therapist the district hired to evaluate students' treatment needs, did an independent evaluation of Ethan Hammons, Gina Hammons' son with autism.
"I definitely recommended school-based therapy," Perry said, although the district did not add it to his individual plan. "To me, he needs the therapy so he can learn to write his name. There are a lot of academic pieces he's not doing."
Perry attends meetings on Ethan's progress at school and said his teacher welcomes her input and the therapy she provides.
Ethan has a full-time aide who works with him in class, but he is focused and behaves better when he comes to school after his morning therapy, Perry and his mother agreed.
"As a therapist, I would want him to have services in school," Perry said. "The problem is, you can sit in a class all day and if background noise bothers you, if disruptions are happening, how much are you really getting out of school?"
Reporter Marilyn Brown can be reached at (813) 259-8069 or mbrown@tampatrib.com.
                                  

 

                           

                                                                                                  

Amy works with 12 year old Ethan at Foundations Therapy in her

                                                                                                    

Clearwater office. "This is his core therapy, this is his lifeline;" 


 



Time Change for School Board Meetings!!! Hillsborough County

Starting September 18, 2007, the School Board of Hillsborough County will change the start
 time for its meetings. The new start time is 3 p.m. – two hours earlier than the current start time.
The School Board also is reserving a time for public comment at approximately 5 p.m. rather
than at the end of the meeting, as has been the case for years.
The School Board decided to make the changes to make it easier and more convenient
for members of the public to participate in the meetings.
Starting September 18 the School District also will enable the public to sign up online
to speak at a School Board meeting. Of course, members of the public will still be able
 to sign up in person at Board meetings.
 
 A Little Inclusion/Universal Education Holiday Cheer even after the Holidays
are over we want to keep it here to share!

Twas the night before Christmas through all of the schools.....
Twas the night before Christmas and all through the schools
No students were present to break any rules
The budget was written and every dime spent
With no one quite sure where it all went

The school board was snuggled all safe in their beds
While visions of budget increases danced in their heads
When all of a sudden there arose such a clatter
They leaped from their beds to see what was the matter

Away to the board room they went in a dash
Too see who it was that threatened the cash
And there before them who did appear
With issues they thought finished this year

Once more before them plainly to see
Were parents of children they called ESE
We've done this before and we were quite clear
So once again tell us why you are here

One of them stepped forward and soon was apparent
That this person before them was one informed parent.
The presentation was prepared with great thought and care
With federal law quotes that brought them great glares

With a voice loud and clear they were all called by name
These are not new laws and the meaning is plain
IDEA ADA LRE and 504
It is time to remind you just like before

We wish you good tidings great hope and good cheer
The time for inclusion is finally here
Why won't you listen to this our plight
To be included is not privilege but right

We want them included right from the start
To become part of the whole and not kept apart
We want them included and yes all means all
Don't make them feel different don't make them feel small

For such a long time the seed has been planted
Why do we still struggle for what to others is granted
No not right now but we'll tell you when
We've heard that same story again and again

So on this the holiest of nights
We say inclusion is not privilege but right
And on this issue we firmly do stand
The rights of our children we do now demand

As the meeting concluded ending the night
It was heard.........

MERRY CHRISTMAS TO ALL
AND TO ALL EQUAL RIGHTS
 



 


Empowering Parents School Box

In light of the vital role parents play in their children's lives as
their first teachers, the U.S. Department of Education will release
this fall a new resource to equip parents with the information needed
for advancing their children's education.
The Empowering Parents School Box is a colorful resource packed with
brochures, bookmarks, a poster and a door hanger that covers such
topics as:
Benefits available under No Child Left Behind;
Steps for selecting a high-quality school;
Tips on working with children from birth to high school;
Guidelines for taking advantage of free tutoring opportunities;
Ways to get involved in children's schools;
Information about financial aid and scholarships; and
Additional resources for improving learning.
Also included are success stories of schools where parent involvement
made a difference, such as the story of one high-poverty, urban high
school, where the achievement gap was cut considerably when only 30
percent of students passing the state exams in algebra and geometry
tripled to approximately 92 percent six years later.
To place an advance order for a free copy of the school box, call 1-
877-4ED-PUBS. For an online copy, visit
http://www.ed.gov
and
select "Parents," then "Empowering Parents School Box."

--------------------------------------------------------------------------------

In the Name of Treatment
A Parent's Guide to Protecting Your Child From the Use of Restraint,
Aversive Interventions, and Seclusion
http://www.tash.org/publications/parentguide/index.htm

Dear Parent Advocates,

We all seem to be having some kind of problem with the FLDOE and the Florida ESE system lately. I hope that some of the contact information below will be of help to you in your future advocacy work. The only way the system is going to change is if we continue to advocate and work together to make the necessary changes happen for our children.

Restraint and Seclusion
IDEA non-compliance
IEP non-compliance
Parents bullied and intimidated at IEP meetings by school district.

File intake information with the Florida Advocacy Center for Persons with Disabilities, Inc. http://www.advocacycenter.org/intake/index.cfm
File a written complaint with the FLDOE about your situation in regards to your child being restrained or put in seclusion. This may not do much but at least it will be documented and on file. This will create a paper trail that you may need in the future. The electronic form is attached.
File a complete with your Department of Children and Families Services (DCF) if your child has been injured physically or mentally. The Welfare of Children Act (HB 7173) amended the definition of "other person responsible for the child's welfare" to include school personnel. Parents can now report suspected abuse by school personnel to DCF. Florida Child Abuse Hot Line 1-800-962-2873
File a complaint with your local police department if your child has been injured physically or mentally.
Florida's Positive Behavior Support Project
http://cfs.fmhi.usf.edu:80/cfsnews/2006news/PBSupdate8.06.html.

This is free program to all Florida schools but they have to be invited in by the school district. Make this request to your ESE Director and your school board. Make this request by phone or in person but always put it in writing also.
Educate and work with your local and state legislatures about restraint and seclusion in the public school system on children with disabilities. Identify problems and present solutions to help solve the current problems our children are facing. Find your Legislators in the link below by ZIP+4 Code (the 4 extra number can be found on most of your incoming mail next to your zip code)
http://www.flsenate.gov/Legislators/index.cfm?Mode=Find%20Your%20Legislator&Submenu=3&Tab=legislators&ZipCode=33436

Work with other parent advocates creating and submitting new bills to your local legislatures. Example of bill subjects: Burden of proof put back on the schools districts, Behavior committee to oversee policies/rules are being followed, State Data system set up by school districts to track restraint, seclusion, suspensions, baker acts and arrests of children with disabilities.
Work with other parent advocates changing current laws that are outdated and need to be revised.
Call and order 20 - 30 free booklets "Making Your Case" 1-877-348-0505 (toll free) and pass them out to other parent advocates. This is a beginners guide to teach advocates how to work with legislators.
Speak at school board meetings about what restraint and seclusion has done to your child, family and other families. Educate school board members about the dangers and trauma of restraint and seclusion. Restraint & Seclusion is NOT a positive behavior treatment, it's a FAILURE to treatment.
Send a "No Restraint" letter to the school principal and ESE Director. Change the letter to fit your situation. A sample letter can be found here:
http://www.bridges4kids.org/IEP/NoRestraintLetter.html

Take pictures of any visible injuries your child comes home with. And make sure you document everything.
Take your child to his/her Pediatrician or the Emergency room for a complete physical examination if needed.
Contact your local media and ask them if they will do a story to educated the public.
Restraint and Seclusion - Join the Yahoo group
http://groups.yahoo.com/group/RESTRAINT_INFO/
to find information and support.
Pass this information on to other parents that may need help.

Other Contact Numbers
Statewide and Local Advocacy Councils
http://www.floridasac.org/

The Florida Developmental Disabilities Council http://www.fddc.org/HOME/index.asp\

U.S.Office of Civil Rights Washington office http://wdcrobcolp01.ed.gov/CFAPPS/OCR/contactus.cfm
Regards,
Phyllis
Families Against Restraint and Seclusion
http://familiesagainstrestraintandseclusion.blogspot.com/

FLORIDA Families Against Restraint and Seclusion
http://floridafamiliesagainstrestraint.blogspot.com/


 
NEW FLORIDA DEPARTMENT OF EDUCATION STATE COMPLAINT FORM!!
Click here to download this form and fill in the blanks
/Documents/Complaint Form draft.pdf
"If you want to file a complaint with the Department of Education,
please fill out the attached DRAFT form and fax or mail it to the name
and address at the bottom of the page. Note: In the complaint portion
of the form you can delete all the lines and cut and paste your information
from a word document or email to the DOE form."

 
Guide to the Individualized Education Program
http://www.ed.gov/parents/needs/speced/iepguide/index.html


The 2007 edition of the electronic handbook "Special Education in Plain
Language" is now available at this link:
http://www.specialed.us/pl-07/pl07-index.html
The "Special Education in Plain Language" document was collaboratively
developed and reviewed by Wisconsin Special Education Stakeholders,
including Parents, Advocacy Organizations, School and Special Education
Administrators, General and Special Educators, Service Providers, Union
Members, Special Education Attorneys, and the Wisconsin Department of Public
Instruction.
This particular electronic / interactive document is the result of the
collaboration between CESA 7, WI FACETS and Wisconsin DPI.
A "Print Option" button will be available toward the end of May, 2007, and
will be posted on the document's front page.
--------------------------------------------------------------------------------




This report done by the National Council of Teacher Quality should be
useful in those times when a school district says that the teaching
certificate by itself makes a teacher qualified. It says that FL should
get an F in preparation of special education teachers. (The national
ones says the same for other states.
cut and paste:
http://www.nctq. org/stpy/ reports/stpy_ florida.pdf





How to Make Your IEP Easier to Swallow by Lori Miller Fox
A Little IEP Humor....:)

There is definitely a season for IEPs. A time of year when stress is in the air, and feelings of panic

and antagonism abound. Parents scurry busily about, preparing for the big day circled

on their calendars. And let's not forget, that list of school people who are naughty and nice.

And like so many other longstanding, if you can remain standing, traditions; year after year you reunite

with many of the same familiar faces, catching up on the events of the year.

Some will even tell you how adorable your child is, and how much he or she has grown.

There are a lot of people sitting around a large table who would rather not be there,

initially forcing themselves to exchange “pleasantries” until someone says something

totally ignorant or offensive and the shouting begins. Just like any other typical

American holiday dinner; only here we're not all related by blood or marriage.

So I’d like to propose a new Hallmark holiday for the IEP season. The biggest problem,

as I see it though, is that unfortunately, there is no cook book for this time of year.

If only Julia Child were here. Lucky for us though, her lesser-known fictional sister,

Julia Specialneedschild offers a long list of IEP “party” recipes. Here are just a few of my favorites.

A gracious host always starts out by giving guests something to chew on before an IEP meeting.

Here’s a tasty snack to get the meeting going. Parents just love these before-IEP snacks because it

keeps school people's mouths busy so parents can get a word in edgewise.

Chex-Your-Rights Mix

Take copies of IDEIA
A copy of No Child Left Behind - but be sure to cut around the rotten parts
Add current regulations
Serve as cold facts. Spoon feed if necessary.

Here’s another snack that ís tasty, but is sometimes hard for school people to swallow.

Take ‘em Down a Nachos

Take years of parental experience
Add pages of private therapists’ reports
Throw expert opinions on top
Don’t forget to fold in the negative-thinking school people’s words, so when your

child succeeds, they can eat them.

Heat things up with a hearty soup. This one’s perfect for the narrow-minded

case manager or Special Education Director. Serves the relevant number of school people who need it.

Administrone Soup

Take a handful of children with special needs
Throw them in a self-contained classroom
Be sure not to include proper programming
Wait until the end of the term, try to mix them
Discard untouched portion.

Next, a light appetizer does wonders for a heavy heart.

Full of Crepes

Take your child’s entire curriculum and leave it flat
Fill it with music, coloring, clapping, and other growth-stiffling activities

with no academic content that take up the school day.

Combine some school personnel’s ideas for your child’s future- leave them half-baked.

For your main course, make something easy that doesn’t require much effort;

like the courses your child is taking at school. For example, a tray of

Wag Your Finger

Sandwiches would do nicely. Here are some popular choices.

Phoney Bologna

Examine the team’s so-called “qualifications” and see if
they’re kosher
Pile on the bologna
Spread related services very thin
Take the school team’s compliments with a grain of salt
And put it all between two slices of your child’s life.

Panini Meenie Minie Moe

Put down a prewritten goal from one child
Layer another prewritten goal from a different child
Pile on another prewritten goal from yet another child
Be sure to leave out any modifications or adaptations t

hat would make it individualized or appropriate
Serve it as your child’s IEP.

Hitting Below the BLT

Discuss and agree on all ingredients before preparation
Pretend to start with appropriate placement
Add necessary adaptations, required modifications,

needed service minutes, and equipment
Freely make substitutions
Stuff with manufactured data and artificial test results
Leave out honesty and trust
Make it into a totally different sandwich, until it becomes a meal

to which your child is academically, socially and emotionally allergic.

Kick Their Butt Steak

Pull apart the meat of the school’s arguments
Present raw data
Be tough with rare exception
Cut yourself some slack
And always, always bite off more than you originally thought you could chew.

Your Child’s Hero

Take big hunks of belief in your child
Add his or her dreams
Spread encouragement and support
Marinate in love
And most importantly, share it with your child.

After the meal, it's appropriate to offer your guests something to drink.

And coffee drinks are an excellent choice. This one's ideal for the teacher

who says "I wasn't trained for this."

Cafe au Lazy

Take a general education teacher
Add a child with special needs
Put them together in the same classroom
Stir up trouble
And wait until you see steam
Don’t forget the foam, from angry parents’ mouths.

Dessert is always a must. This one's a favorite of any parent who advocates for their child.

One Tough Cookie

Shred a huge stack of unmet IEP goals
Crush a large pile of parents’ dreams
Sprinkle in what's left of your child’s confidence--but make sure you really shake it up first
Finally, add the most important ingredient -- a well-prepared special education attorney
Put it all together
And turn up the heat
Wait for expectations to rise.




504 Sit In, 30 Years Ago
Sit-ins were held in Washington D.C., Eugene, Oregon, New York, Los Angeles, and San Francisco.
On April 5th, a group of disabled people took over the San Francisco offices of the Health, Education,
and Welfare Department to protest Secretary Joseph Califano's refusal to sign meaningful
regulations for Section 504.
No one expected to live there for almost a month, but they did.
The action became the longest sit-in of a federal building to date.
The historic demonstrations were successful and the 504 regulations were finally signed!!
For more details about the 504 demonstration, visit the
504 20th Anniversary page on the DREDF website:
http://www.dredf.org/504site/504home.html



Click below for Medicaid Waiver Update
/Documents/APD Questions and Answers on the Medicaid Waiver 2007.doc

-------------------------------------------------------------------------------

Alexa Posny to leave Office of Special Education
for Kansas Education Commissioner role
Posny, passed over twice, becomes new state education commissioner
She missed out on job when conservatives controlled the state board
http://www2.ljworld.com/news/2007/may/09/posny_passed_over_once_becomes_new_state_education/


Fabulous New Blog Spot
http://edu-crat-speak.blogspot.com/
edu-crat-speak
A place to share those precious comments made by our educational bureaucrats
during IEPs and other confrontations!

-------------------------------------------------------------------



No Person Left Behind
Hurricane Season 1 June - 30 Nov
"Be Part of the Solution, Not Part of the Problem"
Your one stop shop of information for Persons
with Disabilities For Hurricanes and Disasters
No Person Left Behind, Inc
Linda Carter
Director No Person Left Behind
704 Homer Ave North
Lehigh Acres, FL 33971
mslindacarter@comcast.net
mslinda@nopersonleftbehind.org
tel:
fax:
mobile: 239 368 6846
239 368 7733
239 826 8696

Great Take and Go Hurricane Preparedness Sheet for the Refridgerator courtesy of FnD!!!
Click here
/Documents/The Take And Go Emergency Book for Hurricane Season.pdf

--------------------------------------------------------------------------------

More Links We Love!

Guide to IDEA 2004

http://idea.ed.gov/explore/home

Accommodations
Assisting Students with Disabilities -


Accommodations - Assisting Students with Disabilities - A Guide for Educators (2003) 756K file size
http://www.firn.edu/doe/commhome/pdf/accomm-educator.pdf



Accommodations and Modifications for Students with Disabilities - What Parents Need to Know (2003) 2MB file size
http://www.firn.edu/doe/commhome/pdf/ac-mod-parents.pdf




Acomodos y modificaciones: Lo que los padres tienen que saber (Revisido en 2003). - 2 MB file size
http://www.firn.edu/doe/commhome/pdf/accomm_span_parent.pdf




Accommodations and Modifications for Students with Disabilities
Career Education and Adult General Education - brochure (revised 2005) 147K file size
http://www.firn.edu/doe/commhome/pdf/310907_accomm.pdf




Accommodations and Modifications for Students with Disabilities
in Career Education and Adult General Education - 98 page guide (revised 2005) 1 MB file size
http://www.firn.edu/doe/commhome/pdf/311201_acmod-voc.pdf




Florida Alternate Assessment Report Resource Manual 764K PDF file
http://www.firn.edu/doe/commhome/pdf/faarm.pdf



Sunshine State Standards

http://www.firn.edu/doe/menu/sss.htm

This is the standard to compare where your child is and it
is also very helpful in establishing the gap and how to close
the academic and social gap through remediation, or theraputic intervention.


Sunshine State Standards for Special Diploma
/Documents/sunshine state standards for special diploma.pdf
 







New Freedom of Information and Public Record Handbook

Click here /Documents/FOIAHandbook.pdf








Family Resource Center
http://www.frcd.org/





Guide to FERPA FamilyFamily Educational Rights and Privacy Act (FERPA)

The Family Educational Rights and Privacy Act (FERPA)

(20 U.S.C. § 1232g; 34 CFR Part 99)

is a Federal law that protects the privacy of student education records.

The law applies to all schools that receive funds under

an applicable program of the U.S. Department of Education

http://www.ed.gov/policy/gen/guid/fpco/ferpa/index.html



GENERAL
http://www.ed.gov/policy/gen/reg/ferpa/index.html




Family Policy Compliance Office (FPCO)

About the Family Policy Compliance Office

The mission of the Family Policy Compliance Office (FPCO) is to meet the needs of the

Department's primary customers--learners of all ages--by effectively implementing

two laws that seek to ensure student and parental rights in education:

the Family Educational Rights and Privacy Act (FERPA) and the Protection of Pupil Rights Amendment (PPRA).

Parents and eligible students who need assistance or who wish to file a

complaint under FERPA or PPRA should do so in writing to the Family Policy Compliance Office,

sending pertinent information through the mail, concerning any allegations to the following address:

Family Policy Compliance Office
U.S. Department of Education
400 Maryland Avenue, SW
Washington, D.C. 20202-5920
FERPA General Guidance for Parents

FERPA is a Federal law that applies to educational agencies and institutions that receive

funding under a program administered by the U. S. Department of Education.

Parochial and private schools at the elementary school levels do not generally receive such

funding and, therefore, are not subject to FERPA. The statute is found at 20 U.S.C. § 1232g

and the Department's regulations are found at 34 CFR Part 99.

Under FERPA, schools must generally afford parents: -access to their children's education records

-an opportunity to seek to have the records amended -some control over the disclosure of information from the records.

Parents may access, seek to amend, or consent to disclosures of their children's education records,

unless there is a court order or other legal document specifically stating otherwise.

When a student turns 18 years of age or attends a postsecondary institution, the student,

and not the parent, may access, seek to amend, and consent to disclosures of his or her education records.

Access to Education Records

Schools are required by FERPA to:
provide a parent with an opportunity to inspect and review his or her child's education records within 45 days
of the receipt of a request
provide a parent with copies of education records or otherwise make the records available to the parent if the parent,
for instance, lives outside of commuting distance of the school
redact the names and other personally identifiable information about other students that may be included in the child's
education records.

Schools are not required by FERPA to:

Create or maintain education records;
Provide parents with calendars, notices, or other information which does not generally
contain information directly related to the student;
Respond to questions about the student.

Amendment of Education Records

Under FERPA, a school must:

Consider a request from a parent to amend inaccurate or misleading information in the child's education records;
Offer the parent a hearing on the matter if it decides not to amend the records in accordance with the request;
Offer the parent a right to place a statement to be kept and disclosed with the record if as a result of the hearing
the school still decides not to amend the record.

A school is not required to consider requests for amendment under FERPA that:

Seek to change a grade or disciplinary decision;
Seek to change the opinions or reflections of a school official or other person reflected in an education record;
Seek to change a determination with respect to a child's status under special education programs.

Disclosure of Education Records:

A school must:

Have a parent's consent prior to the disclosure of education records;
Ensure that the consent is signed and dated and states the purpose of the disclosure.
A school MAY disclose education records without consent when:

The disclosure is to school officials who have been determined to have legitimate educational
interests as set forth in the school district's annual notification of rights to parents;
The student is seeking or intending to enroll in another school;
The disclosure is to state or local educational authorities auditing or evaluating Federal or State
supported education programs or enforcing Federal laws which relate to those programs;
The disclosure is pursuant to a lawfully issued court order or subpoena; and
The information disclosed has been appropriately designated as directory information by the school.

Annual Notification

A school must annually notify parents of students in attendance that they must allow parents to:

Inspect and review their children's education records;
Seek amendment of inaccurate or misleading information in their children's education records;
Consent to most disclosures of personally identifiable information from education records.

The annual notice must also include:

Information for a parent to file a complaint of an alleged violation with the FPCO;
A description of who is considered to be a school official and what is considered to be a
legitimate educational interest so that information may be shared with that person;
Information about who to contact to seek access or amendment of education records.

Means of notification:

Can include local or student newspaper; calendar; student programs guide; rules handbook,
or other means reasonable likely to inform parents;
Notification does not have to be made individually to parents.

Complaints of Alleged Violations:

Complaints of alleged violations may be addressed to:

Family Policy Compliance Office
US Department of Education
400 Maryland Avenue, SW
Washington, DC 20202-5901

Complaints must:

Be timely submitted, not later than 180 days from the date you learned of the circumstances of the alleged violation
Contain specific allegations of fact giving reasonable cause to believe that a violation has occurred, including:
Relevant dates, such as the date of a request or a disclosure and the date the parent learned of the alleged violation;
Names and titles of those school officials and other third parties involved;
A specific description of the education record around which the alleged violation occurred;
A description of any contact with school officials regarding the matter, including dates and
estimated times of telephone calls and/or copies of any correspondence exchanged between
the parent and the school regarding the matter;
The name and address of the school, school district, and superintendent of the district;
Any additional evidence that would be helpful in the consideration of the complaint.

FPCO Contents
http://www.ed.gov/policy/gen/guid/fpco/index.html


Hot Topics
Family Educational Rights & Privacy Act (FERPA)
for Parents
for Eligible Students
Online Library
FERPA Regulations
FERPA Legislative History
Model Notification for Postsecondary Officials
Model Notification for LEA Officials
Model Notice for Directory Information
Protection of Pupil Rights Amendment (PPRA)
for Parents
Model Notiification of Rights Under the PPRA
Court Cases
Training Partners
FAQs
Helpful Links

OCR Case Resolution and Investigation Manual
"All information within investigation files is subject to Freedom of Information Act ..

.. OCR may contact the complainant by phone or in writing to request ...
www.ed.gov/about/offices/list/ocr/docs/ocrcrm.html



Also,
www.ed.gov/policy/gen/guid/fpco/ferpa



Family Policy Compliance Office (FPCO) Home

The Family Educational Rights and Privacy Act (FERPA) (20 U.S.C. § 1232g; 34 CFR Part 99) is a Federal law that protects the privacy of student education records. The law applies to all schools that receive funds under an applicable program of the U.S. Department of Education.

The Agency for Persons with Disabilties Yellow Book

http://apd.myflorida.com/clients/notebook/







Florida and the Statewide IEP Plan
http://www.ecqnet.org/fliep/




Great Take and Go Hurricane Preparedness Sheet for the Refridgerator courtesy of FnD!!!
/Documents/The Take And Go Emergency Book for Hurricane Season.pdf


Great Assistive Technology Link courtey of Tom and Shelby Nurse



Click here:
http://homepage.mac.com/WebObjects/FileSharing.woa/wa/default?user=tnurse&templatefn=FileSharing1.html&xmlfn=TKDocument.1.xml&sitefn=RootSite.xml&aff=consumer&cty=US&lang=en







Articles about OT Goals on the IEP for School

http://www.aota.org/featured/area6/docs/ssfact.pdf









Bureau of Professional Practices for Florida Teachers
Empowering Parents, Protecting Students use this link to file compliants
http://www.fldoe.org/edstandards/




Teaching Students with Autism and Related Disabilities:

Teachers Receive Resources Without Leaving the Classroom
A new website developed by the Center for Autism and Related Disabilities at the University of South Florida is bringing resources directly into the classroom for teachers of students with autism and related disabilities. The CARD Learning Curve website at http://learningcurve.fmhi.usf.edu/

provides interactive stories, ideas, resources and materials for teachers who often have little time and

opportunity to learn from and share experiences with other educators.
“The website serves as a resource for teachers in our 14 county service area,” said CARD staff member Mary Reed, who initiated the website development. Mary, as well as other CARD staff, provides training, technical assistance, and consultation for school personnel and families.

She also facilitates the CARD ESE workgroup, which brings together the Exceptional Student Education Specialists

from the CARD-USF 14 county catchment area.
The idea for the website resulted from Believe in One; Believe in All, a multi-media presentation Mary developed,

which illustrated the school experiences of one child with autism included in third grade.

“I wanted to capture his success along with that of his peers and the teams that supported him,” said Mary.

“We decided to put together a multi-media presentation using still photography and adding voice-over personal

perspectives of Matthew’s inclusion team members, family and peers.
“Matthew’s story told through the presentation conveyed something that’s hard to teach,” added Mary.

“It influences beliefs and values and shows that team work creates success for everyone involved.

” As a result of that project, and Mary’s desire for all educators to see the success of Matthew’s experience,

Mary started thinking of training development activities and new ways to provide teachers with resources without leaving the classroom.
“With all the counties we serve, it makes perfect sense to have a website dedicated for teachers, specific to their issues and needs,” said Mary.

“We wanted to have a way to put teachers in touch with one another so they could showcase the positive things they are doing and are proud of
Resources included on the website include feature stories that recognize classroom innovations and successes, illustrated with photos and/or audio/video clips, interactive tutorials, printable materials to use in the classroom, FAQ's from teachers posted with responses from CARD staff and school district resource personnel, summaries of new materials, links for learning, and schedules for upcoming training events. For additional information, contact Mary Reed at CARD-USF at r
813-974-6155.


Autism and the High Cost to Society and to Families

$35 Billion Per Year to Care for Those Affected
Boston, MA – It can cost about $3.2 million to take care of an autistic person over his or her lifetime.

Caring for all people with autism over their lifetimes costs an estimated $35 billion per year.

Those figures are part of the findings in the first study to comprehensively survey and

document the costs of autism to U.S. society. Michael Ganz, Assistant Professor of Society,

Human Development, and Health at Harvard School of Public Health, authored the study,

which appears in a chapter titled, “The Costs of Autism,” in the newly published book,

Understanding Autism: From Basic Neuroscience to Treatment (CRC Press, 2006).

Ganz hopes his research will help policymakers allocate scarce resources to its

treatment and prevention as well as provide a useful reference for policymakers

and advocates to help them more fully understand the financial impact of autism on U.S. society.
Ganz’s analysis of the costs includes direct and indirect medical costs associated with the disorder.

But he believes the $35 billion annual societal cost for caring for and treating people with autism

likely underestimates the true costs because there are a number of other services that are used

to support individuals with autism, such as alternative therapies and other family out-of-pocket expenses,

that are difficult to measure. In addition, Ganz believes that the level of cost could be higher

if there were more useful and widespread treatment options available.

“Given that the federal autism research budget has been historically less

than $100 million per year and given that research budgets for other conditions

with similar numbers of affected individuals are sometimes orders of magnitude higher,

I hope that my research can help focus more attention on directing more resources

toward finding prevention and treatment options for autism,” Ganz said.

(For comparison purposes, he notes estimated annual costs of other conditions,

including Alzheimer’s disease ($91 billion); mental retardation ($51 billion); anxiety ($47 billion);

and schizophrenia ($33 billion).)
Autism is a pervasive developmental disorder (PDD) that involves severe deficits in a person’s

ability to communicate and interact with others. Children with autism often have trouble using

their imagination, have a limited range of interests, and may show repetitive patterns of behavior

or body movements. The disorder is often associated with some degree of mental retardation.

Autism is the most prevalent PDD and the most common of all serious childhood disorders.

It affects an estimated 1.5 million Americans and is increasing at a rate of 10-17 percent each year.

It is four times more common in boys than in girls. The exact cause of autism is not known and there is currently no cure for the disorder.

Ganz broke down the total costs of autism into two components: direct and indirect costs. Direct costs include direct medical costs, such as physician and outpatient services, prescription medication, and behavioral therapies (estimated to cost, on average, more than $29,000 per person per year) and direct non-medical costs, such as special education, camps, and child care (estimated to annually cost more than $38,000 for those with lower levels of disability and more than $43,000 for those with higher levels).

Indirect costs equal the value of lost productivity resulting from a person having autism, for example, the difference in potential income between someone with autism and someone without. It also captures the value of lost productivity for an autistic person’s parents. Examples include loss of income due to reduced work hours or not working altogether. Ganz estimates that annual indirect costs for autistic individuals and their parents range from more than $39,000 to nearly $130,000.

Since people with autism receive services from a wide variety of sources, Ganz believes future research efforts should focus on identifying those sources and linking those costs to non-financial data about the burdens of autism. These complementary sources of data can provide a richer picture that will be useful to policymakers in the future to assist them in devoting resources to address the financial and non-financial effects of autism.

Contact:
Todd Datz
tdatz@hsph.harvard.edu
(617) 432-3952
Harvard School of Public Health
677 Huntington Avenue
Boston, MA 02115
--------------------------------------------------------------------------------

More Information on Restraint, Seclusion,
and TimeOut Rooms please visit our links on this web site and our community

partners below, the owner of this group Phyliss Muscemi is featured on our Restraint
section of the IPUT website.
PLEASE FORWARD/CIRCULATE WIDELY WITHOUT FURTHER PERMISSION FROM THE AUTHOR:
http://familiesagainstrestraintandseclusion.blogspot.com/2007_08_01_archive.html

A new group has been formed - Families Against Restraint and Seclusion - to end restraint and seclusion (i.e., time out room) abuse of kids with disabilities in schools and residential placements. They have a survey for parents/guardians of kids who have been physically restrained and/or secluded in day and residential schools, which can be found at: http://familiesagainstrestraintsandseclusion.blogspot.com/
I cordially invite you to fill out the survey. This is the first nationwide effort to gather information regarding the use and abuse of physical restraints on children with disabilities in day and residential schools. It is vitally important to document the abuse - if survey responses show it is widespread, the data will be very helpful in trying to end the abuse.
This may be the only way that many parents can fight back against school abuse of their disabled kids.
Let's go for it.
Dee Alpert, Publisher
SpecialEducationMuckraker.com
http://www.specialeducationmuckraker.com


A NO Consent Form for Restraint and Seclusion
http://www.aprais.org/no_consent.html




Click here to read the FDOE's Technical Assistance Paper
on "Time Out Rooms"
Technical Assistance Paper 307907 - Located on the DOE web site
Click here/Documents/TASH on TIME OUT ROOMS.pdf

This is what the DOE Technical Assistance Paper has on "Use of Time Out in
Special Education Programs: Guidelines for Time Out Procedures " and
secured seclusion rooms." The document is 15 years old and needs to be
completely reviewed and updated. This is also on my list of things to do.
The purpose of this paper is to provide districts with information they can
use in developing effective time out procedures. There are no current State
Board of Education Rules that define time out procedures or requirements.
Each district that uses time out has the responsibility for developing
procedures that are educationally appropriate and ensure the provision of a
safe educational learning environment at all times. Consequently, the
information in this paper is provided as a guide for the development of time
out procedures and strategies based on best practices. Much of the
information presented here has been adapted from the procedures developed in
Hillsborough, Pasco, and Pinellas County School Districts
A secured seclusion room must have the following characteristics:
Must have at least 36 square feet
Must be properly lighted (with the switch outside the room)
Must be properly ventilated
Must be free of objects and fixtures with which children could harm
themselves
Must be constructed so that an adult can continuously monitor all areas of
the room, visually and auditorily
Must not be locked. The door may be actively secured with a spring bolt or
other latching device that automatically disengages when released by the
person monitoring the student in the room
Must meet all safety and fire code standards.







Group wants to limit restraint and Seclusion in Public Schools
By Barbara Hollingsworth
THE CAPITAL-JOURNAL
Kristine Stagis carried a framed picture of her 5-year-old son, who has autism, with her to the Kansas State Board of Education meeting Tuesday.
Last year, she said she went to school to find him in a seclusion room, kicking and hollering to be let out.
"The school broke my trust and wounded my son's spirit," the Overbrook woman said.
Parents like Stagis as well as foster parents and advocates for children with disabilities packed the state board meeting for an hour and a half Tuesday to push for regulations that would set standards for the use of seclusion rooms and physical restraint in schools. The state board could take action as early as today.
Proponents of the regulations said seclusion and restraint are overused and outdated. The practices can actually contribute to problems with children, especially those who have experienced abuse, they said.
"The children this affects are some of the most fragile children in the school world," said Jane Adams, director of Keys for Networking Inc.
The regulations would limit the use of seclusion rooms - prohibiting their use for discipline, punishment or staff convenience. They also lay out a minimum size and other standards for such rooms. Physical restraint would be limited to times when a child poses an imminent risk of hurting himself or others.
A few people, representing schools, asked instead that the state approve the standards as guidelines rather than regulations. Regulations would carry the weight of law.
Tom Krebs, of the Kansas Association of School Boards, said schools are concerne d that implementing regulations rather than guidelines would increase paperwork in a field that is already flooded with such work. He also cited the cost of meeting requirements for seclusion rooms and extra meetings as other concerns, saying regulations could become an educational hindrance.
But proponents of regulatory change - who made up most of the 31 speakers - were adamant that guidelines alone wouldn't do enough to create change.
"It is easier to avoid a negative outcome than repair it," Stagis said.
Barbara Hollingsworth can be reached at (785) 295-1285
or barbara.hollingsworth
@cjonline.com.
Copyright 2007
Provided by ProQuest Information and Learning Company. All rights Reserved



More Restraint and Seclusion Articles
'Body sox' used for restraint against Florida 4-year-olds
School officials in Florida are using a highly unusual -- and now controversial --

method to calm students that are upset. It's called a "body sock," and a teacher in Pinellas County has

reportedly been using them to restrain unruly students. According to the device's website, "body sox"

are designed to help kids "explore three-dimensional space," but in practice they are being used for therapy,

and in some cases, punishment.

The device is made of a cloth-like material and zips closed, completely enveloping the child inside.
One 4-year-old boy was placed in the sack, while crying, after he had been given verbal warnings to behave.


His father thinks the teacher was wrong to place him in the device as a form of punishment. "I don't like it at all," said Patrick Holt,

the boy's father.

"I don't think it should be used on anybody." His son was the only one who the teacher reported using the device that day in that class.
The school board has opened an investigation, and it did publicly confirm that body sox are approved for use in classrooms but shouldn't be considered restraining devices. "It has been used in some of our exceptional student educational classrooms

as a very calming therapeutic and well received type of strategy to calm students down,"

school board Director of Communications Andrea Zahn said.




Lee's lack of special-needs options vexes parents
Jason Wermers
jwermers@news-press.com
Eight-year-old Angelina Williams hasn’t been the same since last November, her mother says.
That was when a teacher at Royal Palm Exceptional Center, a school for students with severe emotional disabilities in Fort Myers, cursed at the Cape Coral girl and lifted her off a chair by her shirt, her mother, Tuesday Williams says.
Angelina has childhood-onset bipolar disorder, a condition that causes extreme mood swings. Her mother recently took Angelina to Ruth Cooper Center after the girl hallucinated, talked excitedly and tried to jump off desks.
About 82,000 students are enrolled in Lee schools this year. Of those, more than 11,000 — almost 14 percent — are in the Exceptional Student Education program.
These students, including Angelina, require special services beyond those a general-education student receives each day in class, such as an aide to help with a lesson in a classroom or in a hospital.
Williams and another Cape Coral parent, Kellie Elders, whose daughter also is bipolar, are fighting what they say is a disregard for — or at least an inability to care for — their children.
The school district recently updated its guidelines for dealing with a child with behavioral problems. The manual describes when timeout rooms should be used. It also says physical restraint should only be done by a trained staff member, and only if the child is a danger to himself or others.
“I feel very positive about this because it explains timeout rooms, and it will standardize the process throughout the district,” Superintendent James Browder said.
Elders is skeptical, though.
“It’s just a piece of paper,” she said. “If the schools don’t implement it, it doesn't work.”
Are schools equipped?
The Florida Department of Education has determined that, on balance, Lee County is following the federal Individuals with Disabilities Education Act. The law says disabled students must be provided a “free and appropriate public education.”
But teaching some special-needs children can be tricky. For some students with severe mental illness, even a slight touch can trigger a manic episode during which they may hit themselves or others.
This raises the question of whether public schools can adequately educate children with severe mental conditions.
“If the symptoms are severe, such as the parents called frequently for problems, they should probably be put in therapeutic day schools,” said Dr. Mani Paviluri, director of the pediatric mood disorders program at the University of Illinois-Chicago.
Timeout rooms at issue
Caitlin Elders, 8, and Angelina were routinely sent to timeout rooms, their mothers say. Kellie Elders added that Caitlin was physically restrained.
At least three Royal Palm classmates provided written accounts to investigators from the state Department of Children and Families about Angelina’s treatment by a teacher in November. Two of those students said the teacher pulled Angelina by the shirt, and one said the teacher pulled Angelina’s shirt up over the girl’s face.
The teacher acknowledged in a written response that, on several occasions, she “had to pull or tug on the shirt of a student to get their attention.” But she noted she “never pulled a shirt over a student’s face or head in the classroom or anywhere else.”
The probe by DCF and the school district cleared the teacher of any wrongdoing. She was suspended with pay Dec. 1, but was reinstated on Feb. 13.
“DCF never talked to me or to Angelina,” Williams said.
Kellie Elders took her case to the Florida Department of Education. The department ruled mostly in favor of Lee County but requested the district develop a plan to provide Caitlin counseling that it should have given her in the 2006-07 school year.
The department also requested a copy of the district’s new timeout and restraint guidelines.
Caitlin, who has been diagnosed with schizoaffective disorder bipolar type and autism, has been in hospital/homebound status since January. She gets six hours of instruction a week at home or in a hospital. From August 2006 through January 2007 she attended Trafalgar Elementary in Cape Coral.
Several behavior reports written by a teacher indicate Caitlin would be placed in timeout room, and physically restrained, for talking to herself in the third person — even though that is a symptom of her disabilities. At times, Caitlin was restrained to keep from banging her head on the floor. Teachers also wrote they would hold the little girl’s arms and legs and, at times, sit on her back.
One such incident happened on Jan. 8, while April Katine, a senior advocate for the Advocacy Center for Persons with Disabilities, was observing Caitlin at Trafalgar. The center is a nonprofit organization that works with families of people who have a variety of mental and physical disabilities.
Katine wrote that at one point, she saw two instructional aides carrying Caitlin, each holding one of the girl’s arms out to the side after she had spoken in third person.
Later, “Another student came into the timeout room while Caitlin was being restrained,” Katine wrote. “The little girl looked scared and did not seem to know what to do. (A school employee) told her to come back later. ... Students and teachers come into the room while children are being restrained.”
Before that, Caitlin was at Pelican Elementary where, her mother says, the girl was often placed in a brick-walled timeout room. Lee schools spokesman Joe Donzelli said Pelican has been recognized as a model school by the Association for Positive Behavior Support, which provides schools nationwide with programs to help them manage students’ behavior.
Mental health doctors say Caitlin shows signs of post-traumatic stress disorder. She acted out memories of being punished, restrained and placed in school timeout rooms. Her psychiatrist said she did this without prompting from him.
Elders said that in January the team in charge of Caitlin’s education plan only gave one option: Royal Palm. That was because Trafalgar administration had decided “they were going to begin suspending Caitlin each time she hit another student or staff member,” according to Katine.
But Katine told Elders Royal Palm would not be a good place for Caitlin, either. She said Principal Dan Perry told her “students with mental illness are mixed in with children with behavior problems who are ‘street smart.’ ”
“It concerned me,” Katine wrote in an e-mail to Elders, “that if Caitlin attended Royal Palm she might be preyed upon by the other students.”
The only other option was a hospital/homebound program. Elders said the district should have a school-based program set up for children like Caitlin.
“The Lee County School District board members are equal-opportunity bullies,” Elders said. “Parents will not come forward to discuss their concerns because they fear restitution and retaliation. But we will no longer accept the crumbs they want to throw for our children.”
Donzelli said neither the district nor the team that develops the student’s education plan decides on a hospital/homebound placement. That is only a physician's call.
Donzelli said the district has had nine complaints filed by parents of special-education children since 2003. Of those, six were resolved without a hearing, while the other three proceeded to an administrative law judge, school board attorney Keith Martin said.
Two of those three cases ended up becoming lawsuits in federal court, and both of those are still active, Martin said.
Back at Diplomat
Angelina recently returned to Diplomat Elementary after spending a week recovering from the manic episode that resulted in a stay at the Ruth Cooper Center.
In fact, Tuesday Williams said, she has not been able to stabilize Angelina’s emotional state since the Royal Palm incident last November.
Besides childhood bipolar, Angelina also has recently been diagnosed with a developmental disorder that makes it difficult for her to communicate and socialize with peers, teachers, and at times even her family.
Angelina finished the 2006-07 school year at Royal Palm. While there, Williams said, Angelina was routinely sent to the timeout room.
At the end of the school year, Williams was given a choice of five west zone schools with “supported behavior” classrooms. These are highly structured classes where students are taught academic and social skills.
She chose Diplomat Elementary and, she said, so far, the staff at the Cape Coral school have worked fairly well with Angelina.
If Angelina’s condition cannot be stabilized soon, she may need to be placed somewhere else, such as in a private school that specializes in social-emotional disorders. And this may not have happened if the Royal Palm incident had not taken place, Williams said.
“Lee County needs to be accountable for all the children in their district, including children with mental illnesses,” she said. “And they need to have specific strategies and properly trained teachers and facilities for these children.”



Reformers Push to End Restraint, Seclusion
Death, injuries prompt training of workers in more positive methods.
Encarnacion Pyle, The Columbus Dispatch, April 24, 2005
For more articles like this visit http://www.bridges4kids.org.
Matthew Goodman, an autistic teen, spent the last 16 months of his life heavily sedated,

in arm splints and a helmet, at Bancroft NeuroHealth in New Jersey. The restraints were supposed to keep him from picking at an injury, but his mother thinks they contributed to his death at age 14.
Children who fight, throw tantrums or threaten workers while in residential care

in Ohio are more likely to be tackled or dragged to a ‘‘seclusion room" than given a psychiatric drug.
In the first six months of 2004, kids were held down or isolated 9,920 times,

according to logs the treatment centers gave the state.
But some say a movement to reduce the use of these practices has

been slowly sweeping the country since the Hartford Courant documented

142 deaths during or after restraints between 1988 and ’98.
‘‘Seclusion and restraint should no longer be recognized as a treatment option at all,

but rather as treatment failure," said Charles Curie, who heads

the federal Substance Abuse & Mental Health Services Administration.
Seclusion rooms can be a single bedroom or a small room with only a bed

and a window where staff members keep watch.

Restraints can vary from holding a patient’s arms to pinning someone to the floor.
Under Curie’s watch as deputy secretary of mental-health services in Pennsylvania,

state hospitals there cut the number of hours children were in seclusion or restraints

by more than 90 percent between 1997 and 2001.
In May 2003, Curie issued a national call to eliminate these methods,

and last fall his agency awarded $5.3 million to agencies in eight states,

not including Ohio, to come up with alternatives to calm people of all ages who are acting out.
The danger is more than emotional.
In Ohio, more than 150 children and 55 residential workers have suffered bruises,

broken bones or other injuries during seclusions and restraints the past two years.
In 1999, a 14-year-old boy in foster care died in a Fairfield County home

while wrapped in a mattress like a hot dog in a bun.
But since 2003, the Ohio Department of Mental Health has

taught more than 270 residential-center and psychiatric-hospital

workers nonviolent ways to control aggressive children and adults.
The agency also has created three groups of professionals to promote

other ways to defuse potentially fiery situations.
‘‘They’re like supernannies, giving helpful hints to staff whose buttons

are being pushed by sick, challenging kids," said Penny Wyman,

executive director of the Ohio Association of Child Caring Agencies.
Leading the charge in central Ohio are Buckeye Ranch in Grove City

and St. Vincent Family Centers, which has residential and partial

hospitalization programs on the Near East and West sides.
The threat of force can backfire by making children resistant to future treatment,

said Michelle Ward, president and chief executive officer of St. Vincent,

which specializes in troubled kids age 12 and younger. The center also works with teens.
‘‘You don’t use a fire hose to put out a trash-can fire," Ward said.
Residential workers need to learn how to intervene when children show

the first signs of being upset or under stress, she said.
At age 42, Sondra Williams is still living with the effects of being frequently bound,

held down and overmedicated during years spent in psychiatric units.
‘‘It’s left me with a lifetime of emotional scars that will never heal," said Williams,

of the North Side, who was in and out of institutions until doctors discovered

recently that she was autistic instead of mentally ill.
Buckeye Ranch has cut its restraint use from a high of 1,029 incidents in

2002 to 766 last year, said Rick Rieser, president and chief executive officer.
But it still ranked third highest among the state’s 52 children’s

residential centers for the first half of last year, according to Department of Mental Health records.
Buckeye officials said their figures are high because they report restraints

‘‘to the letter of the law," and it’s a big center. It has 84 beds.
Still, not everyone thinks Buckeye and St. Vincent are doing all they can.
Last year, Ohio Legal Rights Service sued both for allegedly failing

to share records of children who had been restrained, including a

13-year-old whose wrist was broken by a Buckeye worker.

The independent state agency investigates potential abuse of disabled residents.
On April 13, U.S. District Court Judge James L. Graham

ordered Buckeye to provide all records relating to the fractured wrist,

as well as all seclusion and restraint records since the suit was filed in May 2004.
The St. Vincent case is pending.
Since August 1999, the federal government has recorded 130 deaths nationwide,

including five in Ohio, related to restraints and seclusion.

But Ohio Legal Rights says the correct figure for the state is nine deaths.
Either way, the numbers show that people are still being hurt and killed,

despite progress in the use of other techniques.
Saudia McGuire couldn’t agree more.
The 33-year-old single mother of three boys simply has to look at the photos in her purse.
Instead of her 9-year-old son’s shybut-devilish grin, she sees dark,

deep bruises covering his arms and legs and a rug burn on his neck.
‘‘Devin was hurt twice while restrained at St. Vincent’s two years ago,"

said the East Side resident. ‘‘One time, he ran out of line and down a hallway

and was dragged by the collar of his shirt by a worker."
Franklin County Children Services, which has temporary custody of

Devin Chrysafis, investigated both incidents but didn’t substantiate any charges.
McGuire called police the second time he was hurt but was

told residential treatment centers are held to a different standard.
‘‘If I had given him those bruises, my other two children would

have been taken away from me and I would have been hauled off to jail," she said.
In the end, Children Services moved her son to another center.

He’s now at the Children’s Aid Society in Cleveland, where McGuire is happy with his treatment.
Janice Roach isn’t so lucky.
Her 14-year-old son, Matthew Goodman, died in February 2002, a day

before he was scheduled to leave a New Jersey institution that Roach

feared had been abusively restraining him.
‘‘They killed his spirit long before his body," said Roach,

now an advocate against restraint and seclusion who lives

in a suburb of Philadelphia with her two other children.
In 1996, Roach and her ex-husband enrolled their severely autistic son

at Bancroft NeuroHealth, once considered one of the nation’s top institutions for the disabled.
Things went well for Matthew, who had other medical problems.

But in the spring of 2000, he developed a blood infection in his leg from an open sore.
After a summer confined to a bed at Children’s Hospital in Philadelphia,

he went into the medical unit at Bancroft, which is in Haddonfield.
Matt sometimes picked at his injuries and, without classes,

friends and recreational activities to distract him, his self-destructive behavior worsened.
Workers put him in arm splints and a hockey helmet and heavily sedated him.
‘‘He spent his days lying on the floor of Bancroft’s NeuroHealth unit barely conscious," Roach said. ‘‘It was 16 months of cruel torture."
After a long search, Roach found a Florida rehabilitation center willing to take her son. She visited him the weekend before his scheduled transfer.
‘‘He was on the floor, totally out of it," she said. ‘‘I laid down next to him and told him, ‘Just hang in there, Mattie.’ "
Two days later, a nurse at Bancroft called her. They couldn’t find his vital signs, and they were driving him to Children’s Hospital.
He arrived at the emergency room comatose — still in restraints.
‘‘My baby was dying, and they kept him tied up like a monster," Roach said.
He died the next day of pneumonia, blood poisoning and an acute respiratory infection.
This page printed from: http://www.bridges4kids.org/articles/5-05/Dispatch4-24-05.html



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Special Education Blog

http://specialedlaw.blogs.com/


Autism Law Web

http://www.aboutautismlaw.com/



Florida Tape Recording Law
http://www.rcfp.org/taping/states/florida.html
All parties must consent to the recording or the disclosure of the contents of any wire,

oral or electronic communication in Florida. Recording or disclosing without the consent of

all parties is a felony, unless the interception is a first offense committed without any

illegal purpose, and not for commercial gain, or the communication is the radio portion of a

cellular conversation. Such first offenses and the interception of cellular

communications are misdemeanors. State v. News-Press Pub. Co., 338 So. 2d 1313 (1976),

State v. Tsavaris, 394 So. 2d 418 (1981).

Under the statute, consent is not required for the taping of a non-electronic communication

uttered by a person who does not have a reasonable expectation of privacy in that communication.

See definition of "oral communication," Fla. Stat. ch. 934.02.

Anyone whose communications have been illegally intercepted may recover

actual damages or $100 for each day of violation or $1,000, whichever is greater,

along with punitive damages, attorney fees and litigation costs. Fla. Stat. ch. 934.10.

A federal appellate court has held that because only interceptions made through an

"electronic, mechanical or other device"

are illegal under Florida law, telephones used in the ordinary course of business

to record conversations do not violate the law. The court found that business telephones

are not the type of devices addressed in the law and, thus, that a life insurance company

did not violate the law when it routinely recorded business-related calls

on its business extensions. Royal Health Care Servs., Inc. v. Jefferson-Pilot Life Ins. Co., 924 F.2d 215 (11th Cir. 1991).


The Autism Clause How Lawyers Can Get Around the Education

Price Tag from New York magazine

The Autism Clause
A handful of new schools charge up to $140,000 a year to educate an autistic child. Who can pay that much? Anyone with the right lawyer.
By Alyssa Katz

http://nymag.com/news/features/23172/



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Politics and State Issues


Who is Charlie Crist? http://www.flgov.com/



More Legislative Updates
Agency for Persons with Disabilities Legislative Roundup from Jane Johnson
/Documents/2007-legislative-wrap-up.pdf



Florida Developmental Disabilties Council 2007 Capitol Update
/Documents/FDDC Capitol Update 5-10-07.pdf

Are you interested in networking with other parents, do you have questions about schools,

please contact us here at the web site as we are planning some great outings, rallies and more!

Do you have an event, an idea, a topic you would like to know more about? Email us and we will put it on!!! IPUT@tampabay.rr.com
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Here is some more Transportation Info

Check out the link on this site as well!


Transportation as a related service is included in an eligible student's IEP if the IEP team determines that such a service is needed. Transportation includes:
• travel to and from school and between schools;
• travel in and around school buildings; and
• specialized equipment (such as special or adapted buses, lifts, and ramps), if required to provide special transportation for a child with a disability [Section 300.24(b)(15)].
Public school districts must provide transportation to students with disabilities in two situations. These are:
• if a district provides transportation to and from school for the general student population, then it must provide transportation for a student with a disability; and
• if a school district does not provide transportation for the general student population, then the issue of transportation for students with disabilities must be decided on a case-by-case basis if the IEP team has determined that transportation is needed by the child and has included it on his or her IEP (Office of Special Education Programs, 1995).
If the IEP team determines that a student with a disability needs transportation to benefit from special education, it must be included in the student's IEP and provided as a related service at no cost to the student and his or her parents (Office of Special Education Programs, 1995).
Not all students with disabilities are eligible to receive transportation as a related service. As Attachment 1 of the Federal regulations for IDEA '97 points out:
It is assumed that most children with disabilities will receive the same transportation provided to nondisabled children, unless the IEP team determines otherwise. However, for some children with disabilities, integrated transportation may not be achieved unless needed accommodations are provided to address each child's unique needs. If the IEP team determines that a disabled child requires transportation as a related service in order to receive FAPE, or requires accommodations or modifications to participate in integrated transportation with nondisabled children, the child must receive the necessary transportation or accommodations at no cost to the parents. This is so, even if no transportation is provided to nondisabled children. (U.S. Department of Education, 1999a, p. 12551)
A student's need for transportation as a related service and the type of transportation to be provided must be discussed and decided by the IEP team. Whether transportation goals and objectives are required in the IEP depends on the purpose of the transportation. If transportation is being provided solely to and from school, in and around school, and between schools, no goals or objectives are needed. If instruction is provided to a student to increase his or her independence or improve his or her behavior during transportation, then goals and objectives must be included in the student's IEP (Office of Special Education Programs, 1995).


Check out the transportation section on our website as well.......




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Medicaid for Elderly or Disabled - January 2007

The State of Florida has several programs designed to provide Medicaid to low income individuals who are either elderly (65 or older) or disabled. This is referred to as SSI Related Medicaid.


Additional information about Medicaid for elderly or disabled individuals is available in the SSI Related Medicaid Fact Sheet -
http://www.dcf.state.fl.us/ess/ssifactsheet.pdf.



The Social Security Administration determines Medicaid eligibility for elderly and/or disabled individuals who are eligible for Supplemental Security Income (SSI) cash assistance.

Information regarding the income and asset limits for Medicaid for elderly or disabled individuals can be found on the SSI-Related Programs Financial Eligibility Standards - http://www.dcf.state.fl.us/ess/ssi_fin_elig_chart.pdf

If you would like to receive this e-mail in an alternate format, please contact Elizabeth Jennings at elizabethjennings@unitedwaypbc.org or 561-375-6639.
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